On Tuesday night, we all gathered at Reed Space in the Lower East Side of Manhattan to raise money for 5 month old Baby Leni. Baby Leni was born with acute megakaryoblastic leukemia (AML-M7), a rare form of pediatric bone marrow cancer.  It represents approximately 1% of all leukemias during childhood & has an incidence of 0.5% per million per year. I’ve known her amazing and lovely young parents Jerry and Amanda for over 10 years now and watched them grow as a loving couple (adorably nicknamed “Jemanda”) into a trio when their first daughter Mae was born and now into a quartet with Miss Leni.
Me and Elle, Reed Space NYC 10.8.13
The news is heartbreaking, yes…BUT…you can help. If you remember a few years back I blogged about Jasmina who was also battling a rare form of bone marrow cancer. I went to a drive, got my inner cheek swabbed and now I am in the database for anyone that matches me and needs a bone marrow donor. Voila. Easy! Unfortunately, Jasmina never found a match and at 6 years old she passed.
So, I encourage you to please check LOVEFORLENI.COMÂ and SWABACHEEK.ORGÂ to find how you might be able to help Leni or another person who needs your help. You could save a life! How amazing would that be?! I’ll keep everyone posted on the happenings for Leni here on the East Coast, so hopefully you can come out and support.
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